Tonight I got call from a very close friend in Holland, his little boy Luca has the same thing as Dyan and has been fighting for his life for over two years also.  Saddly he passed away yesterday.  I am not sure how I feel right now, knowing that Dyan doesn't have long.  It is some what a comfort to know that she will have a very special friend in Hevean to play with.  Please keep Luca's family in your prayers. 

Dyan is in a lot of pain and we talked to her doctor tonight and she has increased her medications again to try and get the pain under control.  I did tell Dyan about Luca and she is sad, but knows that he is waiting for her to play. 

These children need our help so bad to get the word out about these diseases so that we can find a cure.  Please if you can keep emailing this site to everyone that you know to help.  The funding is needed also for the research. We are selves have had a simple garage sale for the last two weeks, with donations from other families in the area and family and have raised over $2000.00 for the foundation.  It is as simple as that. Please we are asking and begging for help to fund research at the UW of Madison Childrens Hospital.  Anything will help.

                                                                                            God Bless, Tonya

Our hearts break for Luka's family. Jesus was there to meet him in heaven. Tonya is taking the news very hard and my love for her is hers. Please do what you can the diseases are killing our kids.....

Mike

 

I was watching cnn today and they do a segment on heroes and they said they want us to go to cnn.com and tell them about our hero. i think we should bombard them with Dyan's name and story perhaps she will be chosen. mitz

done!

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