up date - Tuesday, April 1st 2008 8:55 AM
WOW a lot has changed in the last almost nine months since we lost Dyan. We are living back in Burlington so that we can be closer to her. It has been a hard nine...
UPDATE - Tuesday, July 10th 2007 10:15 PM
Today we admitted Dyan into University of Wisconsin Children's Hospital room 430 to get her pain under control. They put a PIC line in so the meds can be through the veins. She...
up date - Friday, July 6th 2007 11:32 PM
Tonight I got call from a very close friend in Holland, his little boy Luca has the same thing as Dyan and has been fighting for his life for over two years also. Saddly...
UPDATE - Thursday, July 5th 2007 6:03 AM
What a bad day/night Dyan had. She lost all control of her Bowel functions and dropped on the floor. She was looking forward to watching the fireworks but couldn't even get to...
Update - Sunday, July 1st 2007 7:25 AM
Dyan has not been out of bed since Tuesday. Her breathing continues to be very irratic and she has been convulsing. We talked to her about not being afraid anymore. She said she...
Update - Thursday, June 21st 2007 8:51 AM
Dyan is holding her own still. Her breathing is very shallow. 2 days in a row she has wanted to get up around 9 oam. It's nice to see her up even though she is in extreme pain....
up date - Sunday, June 17th 2007 7:10 AM
Dyan didn't have a good night. She woke up at 9pm and was having a lot of chest pain, feeling like something was stabbing her. It took awhile to calm her down and go back...
Update - Thursday, June 14th 2007 8:11 PM
As we keep going so is Dyan. She is in so much pain and discomfort. The Doctors and Nurse are doing the best they can to controll it. We keep praying for peace and her to be...
UPDATE - Monday, May 28th 2007 5:54 PM
Dyan had a good day yesterday with her Uncle Gig, Aunt Jilann, Dallas and Jordan. We celebrated Dallas's 16th birthday. Since then it hasn't been good. She can't swallow her...
UPDATE - Saturday, May 26th 2007 7:06 AM
This week Dyan is holding on. She is very strong willed and tough. Her pain level is high and we do what we can to help this. She spends long hours days in bed basicly out...